Here are my random thoughts as I get a grip on having cancer at 42 (now 49) years old. I would like to inspire hope in all of you and in myself as well as to provide a place for you to keep track of me through this ordeal.
December 29, 2009
2009 Winds Down
Interesting... I would guess that I'm either more complacent, becoming more comfortable with my situation, or that there just haven't been a lot of changes, and subsequently, less news to share. The reason doesn't matter, I'm going to enter 2010 with the goal of posting more frequently.
I'm in the midst of two weeks off and it sure is flying by! A week from today I have my monthly appointment with Dr. V. I'm still feeling the same with little to no pain for the past several weeks which leaves me in my usual predicament of not knowing what the heck to expect.
At some point in 2010 I'm going to have to move on to another treatment regime. It could be another round of chemo. Perhaps we'll find a clinical trial we are comfortable with. Maybe we'll take the conservative path, again, and move on to DES/Estrogen.
At this point in time, I do not have a preference and am not leaning one way or the other. Mary will elect or prefer to take the path that is most conservative and has the least impact on my, our, overall quality of life. She is a saint. I can't say and don't mean to imply that her choices are
wrong, it's just at times I'd like to be a little more aggressive. However, had we taken a more aggressive path over the years it doesn't mean my current condition would be any different. Once again, perhaps she's right.
Peace be with you all, have a Happy New Year and may 2010 bring you good health, joy and happiness!
December 18, 2009
Joe had to go!
In just over an hour I'm going to have lunch with a really, really good friend.
Our friend Joe is off to Tucson next week. It's a great career opportunity and what is sure to be a life changing event.
I'm not sure what I'll miss about him most? Here's a sample of some of my blog posts that mention Joe. Disc golf on Saturday mornings will never be the same without Joe, Sadie and Pete (his dogs). My mind goes back to road trips and overseas trips with Joe.
Sweden the summer of 2006, my how three years has just flown by! Followed up by the British Open. A trip to Des Monies and Omaha in April of 2007 for back to back tournaments. Perhaps the most fun was the day Joe, Rich and I went to Marshall and Columbia Missouri and played 72 holes!
A picture from this years FLHW Golf Tournament captures his personality perfectly!
So long my friend! Be safe, stay in touch and come back often!
December 15, 2009
There is an app for that!
It took some time to develop, but the final version of the FLHW iPhone App is complete and ready to download. If you are using an iPhone or iTouch, click the image below to download. You can also go to the iTunes store and search for 'FLHW'. It's free, please go download today and let me know what you think. There is a lot of information on FLHW as well as on Prostate Cancer in general. You can also share with friends, etc. via Facebook and Twitter.
I owe all of this to a company here in Kansas City, MTB Mobile. Jeff and Andy put a lot into this little app, and they did all of it out of the goodness of their hearts. Thanks to both of you for all your hard work and persistence through the Apple approval process.December 11, 2009
2009, you were good to us!
It seems like just a few weeks ago we were wrapping up 2008.
Today we closed the year for the Faith, Love, Hope, Win Foundation by making our annual donation to the Prostate Cancer Foundation. I am proud to announce that for 2009 our donation is the same as 2008, $32,000!
To raise that much money, in the midst of this economy makes me so proud of all that have helped throughout the year. Two poker events, a disc golf tournament, the greenhouse event and of course the golf tournament.
I'm a little speechless right now. In just four and a half years FLHW has raised over $132,000!!
We couldn't have done any of it without the help of all the players, sponsors, friends and family.
God bless you all.
December 09, 2009
Lucky Sevens
At this week's event we had 42 players and raised slightly more than $1,500! It was really great to see a number of first timers. I hope they enjoyed themselves and will come back for future events! The room and tables were packed! In the end Brad took first and Tim second.
Also on Monday I had my monthly doctor visit, Lupron shot, PSA test and quarterly Zometa infusion. The meeting with Dr. V was rather quick. My PSA rose to 108.8. We decided to maintain the current regimen through the holidays. I am feeling great and the other tests were in the normal range. When I return next month, on January 4th, as long as I remain pain free and my PSA remains somewhat stable, we will just continue on. (All of the pictures are here).
December 06, 2009
Hold 'em or Fold 'em?
Even with the cold weather we are experiencing, I played disc golf both yesterday and today. Yes, it was about 28 degrees yesterday and 33 today when we started, but with very little wind it was beautiful, perfect weather for a round. More importantly, I played pain free and remain that way 10 hours later. Next weekend will be my last opportunity to play with one of the regulars before he moves to Tuscon. I'm a little sad to see him go. He will be missed a lot.
Tomorrow is day 28 which means it's time to go see Doc V. I've been feeling really good since a week after my last visit, however we just never know what's going to happen.
Finally, tomorrow night is another event for the FLHW Foundation. We will be playing a Texas Hold 'em poker tourney at Johnny's Tavern in Overland Park. Click here for details, for those of you in town I hope you can make it!