May 19, 2008


So today was monthly update day, month number 39!

First of all the trial, being what I believe to be a typical trial, works like this;
- I have to be off Nilandron for 6 weeks BEFORE I can enroll. That wasn't clear until this morning.

I did a good job of biting my lip when the trial manager explained this to us. So now I will have bone scans, CT scans and a chest x-ray on June the ninth and my first treatment in conjunction with my 40th month appointment on June 16th.

I did receive my PSA, it's up again to 48.87. I suspected it had climbed as I have had a few twinges lately that I knew meant something. Not pain but just little things that after three plus years of this were signs.

I'm going to call Dr. Van tomorrow to make sure we are OK to wait another four weeks? I just don't want my PSA to climb much more. My guess is that is the risk we take, I'm not sure I'm comfortable with that as I write this tonight?

I'm off to a baseball game, perhaps two hours of 11 year old baseball will take my mind off this for a while......

BTW - the port was awesome!! No needles in my arms and tomorrow I will test my ability to throw a disc again!

Historic Data:
5/19/08 48.87
4/21/08 38.31
3/24/08 34.7
2/25/08 29.4 (Started taking Nilandron on 2/4/08; Started Selenium 200 mcg on 2/26/08)
1/28/08 36.2 (Stopped taking Ketoconazole and Hydrocortisone in anticipation of next treatment)
12/31/07 30.9
12/3/07 21.9
11/5/07 23.3
10/8/07 19.30
>10/8/07 Changed Lupron from 120 day dose to monthly dose> 9-12-07 Began taking .5mg of Avodart per day. Changed Ketoconazole from 600mg twice per day to 400mg three times per day)
9/4/07 21.80
8/6/07 19.25
8/2/07 16.96
7/02/07 20.30
6/04/07 17.80
4/30/07 16.25
4/2/07 17.68
3/5/07 21.87
2/5/07 20.90
1/8/07 18.90
12/11/06 24.86
11/13/06 43.61
10/16/06 51.48 (Started "High Dose" Ketoconazole and Hydrocortisone, 10/01)[at this point and for a second time we prepared for Taxotere. First my Oncologist wanted to try High Dose Ketoconazole and Hydrocortisone.]
9/11/06 83.97 (started Zometa)
8/23/06 41.77
8/18/06 54.66(no tests in June or July)
5/19/06 11.37 (stopped Casodex)
4/3/06 4.25
3/5/06 1.45 (started Casodex again)
1/27/06 0.46
12/28/05 1.85[at this point we prepared for Taxotere, chemotherapy treatments. First I had a new PSA test and new bone and CT scans, lymph nodes clear, spine clear, ribs, femur and hips stable. The PSA dropped to 1.85 and the scans revealed marked improvement. Chemo was cancelled 72 hours before it was scheduled to begin]
12/15/05 7.18
11/03/05 4.64 (Stopped taking Casodex)
9/22/05 0.8
08/11/05 0.35 [nadir]
6/24/05 0.55
4/17/05 2.51 (taken at MD Anderson, Gleason lowered to 7/7)
4/06/05 3.51 (Six weeks after starting Lupron and Casodex)Original Gleason scores (7/8)
Pre-treatment tests:
2/18/05 Started Lupron
2/11/05 Started Casodex
2/?/05 219
12/?/04 189 (Original test)

1 comment:

Anonymous said...

David, I haven't posted to your blog for awhile but you and your family have remained at the forefront of my prayers and thoughts.

Peace be with you my brother.