It was last Friday, very early in the morning (1:15am) and it was my fourth day in the hospital. I obviously could not sleep. Though the staff on the Oncology/Hematology floor was great, the constant blood drawls and vital sign checks were driving me crazy and making sleep nearly impossible. I needed to be home.
Earlier in the week I had a stent placed in each kidney in order to deal with blockage and allow urine to drain from my body. I had experienced acute kidney injury. It was dangerous and a very scary experience for me, as well as the family. After the kidneys were drained, the surgeon attached tubes to my kidneys and put 2 holes in my back to allow the tubes to come through and attach to bags to capture urine. The good news is that it appears my kidneys are recovering and the marker for kidney function is back in the normal range. We met with Dr. Van yesterday and he was pleased with my progress. We scheduled an appointment for an outpatient surgical procedure on Thursday to have the tubes internalized so that they will allow the urine to flow from my kidneys directly to my bladder, which will allow me to urinate normally. We are relieved that the bags are just temporary. The blockage due to cancerous tumors will not allow normal drainage. The tubes will have to be replaced every 3 to 4 months, which will also be done on an outpatient basis.
After being released and returning home on Friday, the worst part has been getting the pain under control. By Sunday at noon the dosages of both Oxycontin and Oxycodone were not keeping up. My pain and discomfort was increasing. Mary made a phone call to the doctor's after hours number. The doses of my pain meds were immediately doubled and Prednisone was added. After a few painful hours, I felt much better. I even ate a rather larger dinner (for my standards) Sunday evening. I told Mary I enjoyed the meal more than I have in the last three months. Another positive note to report is that I have gained a little weight over the last week.
What lies ahead for the cancer treatment is another unknown. We have our monthly appointment with Dr. V on Monday (April 23rd) and will discuss treatment options and start to make a game plan.
Thank you to everyone who has been praying for us and sending us so much positive energy.