I always knew there would be an end to my current treatment, there is no cure after all. I knew it would only last so long. Like each of the proceeding treatments, this one was just me scuffling with the enviable, time.
My appetite had gotten so bad last week that we called the nurse in Boston on Monday morning. After consulting with the doctor, she called back and told me to stop taking the drug (XL-184). We don't know how quickly the side effects will subside, but we are hoping soon, so that I can get my strength back and resume some semblance of normalcy.
Mary and I will be going to Boston in the next several weeks. I will have scans done once again and then we will meet with our doctor. Item one on the agenda will be to determine our options - should we change the dosage to a lower amount, or what is next? There is a newer trial of XL-184 at 40mg (I'm still at 50mg), but I believe the way the trials work, to adjust to the 40 mg I would have to quit the existing trial I'm in and and qualify for the newer trial. If the new trial has an exclusion criteria for previous XL 184 patients, then I would not qualify and must pursue other options.
Once we determine the next treatment, I'll share the details. Since I was diagnosed with advanced prostate cancer, we have worked to support the research to find improved treatments and ultimately a cure for this dreadful disease. We are living proof of this need. For now, me move on with our heads held high and prayers on our lips and in our hearts.