I'm sure you have all realized the frequency of my posts has dropped considerably. A few of you have written to express your concern. I appreciate all your comments. No worries...I'm still here, but the battle and how we fight it have both changed considerably. The pain and amount of pain meds that I must take to manage the pain has increased significantly. Unfortunately, a side effect of the pain meds is that I am frequently groggy and I guess less creative. Both lead to fewer posts.
Next Monday we go to see the doctor for my monthly shots. We are planning to have a discussion about my current state and see if there is something I can change. Perhaps a few short doses of radiation would alleviate the pain and then I would not require such a high dose of pain medication. Another option may be to pursue the expanded access program for Alpharadin. Currently, the closest active site is St. Louis, which would be a quick four hour drive from here. Chemo remains an option as well and will also be considered. The main thing I am looking for is pain relief as quickly as possible, while not jeopardizing my eligibility for other trials in the future.
MDV3100 is still on the horizon!
MDV3100 is still on the horizon!
I promise to provide a more timely update after our appointment on Monday.
Please understand that I'm still here, battling everyday, and still determined to not succumb to this hideous disease, but I am just a little distracted by some of the ugly aspects of this disease.
4 comments:
Angels in your pocket as you continue your journey ^j^
Thank you for the update - hoping Monday brings some better options for pain relief and future treatments.
Thoughts and prayers with you,
Sharon
Keep fighting the fight - you are an inspiration to all of engaged in this desease.
Prayers are with you..
SFM
I've been thinking about you and I look at your website almost daily. Thanks for taking the time to update us even though you probably didn't feel up to it. Faith-Love-Hope--they are great!!
Tammy
Post a Comment